Claire and Cherry Pie

Tag Archive: Chronic Illness

Camperdown Cruise 2015 – with a little help from my friends!

I have a confession to make... I have serious FOMO (fear of missing out). It can be all-consuming and anxiety-inducing. My dog has it too, although I like to think I manage mine better than he does 😉 The fact that my calendar seems to be quiet for a while and then have 3 things on the same time that I want to go to, like last weekend certainly doesn't help! I hear this phenomenon isn't exclusive to the chronically ill but sometimes I do think the calendar Gods are against me! Then the added element of having to miss out and cancel on a lot of things due to fatigue or not being able to get there and back under my own steam really doesn't help the situation.

Mental Health Week 2015 – My mental health story

On Monday night a very interesting episode of ABC's 'Q and A' was on, it was a special edition for 'Mental Health Week' and the panel consisted of psychiatrists, mental health advocates, and industry specialists. One thing that was discussed at length was the stigma attached to mental health. It's sad that there is still such a stigma because so many people have issues in this department.

A Symphony of Science for Dysautonomia

Are you someone who likes to join in or do you prefer to sit back and take it easy? Do you like to get up and be involved, find new friends and new communities, new things to do, new inspiration and new ways to have fun? I do! And this year I am getting involved by co-organising a concert to raise funds for research into Dysautonomia that is being conducted at the Baker IDI Heart and Diabetes Institute - hope you can come along!

Disability – What’s in a name?

How do you define Disability, what does it mean to you and why? I mostly saw disability through the eyes of an able person with little experience of that world until I realised I belonged in that world. I thought disability would be obvious; there would be things like mobility aids, Auslan interpreters, white-tipped canes and service dogs - I thought that disability was something you could see, which meant that chronic illness was illness, not disability.

More precious than gold

This week I officially joined the ranks of the Australians who receive regular infusions of a blood product to help improve their health. There are thousands of Australians who require regular infusions of human blood products, to help treat many different, and often serious conditions. 1 in 3 Australians will require blood in their lifetime and according to the Australian Red Cross; "Currently only 1 in 30 people in Australia give blood"