A few weeks ago I posted about an upcoming concert to raise funds for Dysautonomia research conducted at the Baker IDI heart and Diabetes Institute. The concert was on Wednesday 30th of September and exceeded expectations! We had a full house, smashed our fundraising goal and have had some really positive things come out of it. Thank you to everyone who attended, I hope you had a marvellous night, I know I did!
There were a lot of people who couldn’t be there but wanted to, some were interstate, some overseas and some too unwell to attend – you expect that will happen with chronic illness but expecting it and being ok with it are two different things. I hate having to miss out on things because my body just can’t do it. So for those who couldn’t make it, and for those who want to check it out again, here is a selection of photos from the night and a video of my explanation of Dysautonomia, using an orchestra as the example – it’s my very first youtube clip!
The concert was the perfect event to kick off Dysautonomia awareness month; Dr Gautam Vaddadi spoke about Dysautonomia and how he came to be researching and specialising in it as a Cardiologist. Michelle Roger (from living with Bob) and I spoke about the patient perspective and why Dysautonomia research and awareness is important – Michelle’s sparkly mermaid scale top made a great impression, as did our speeches.
Some of those who couldn’t make it were there in more than spirit! To help spread awareness we had a series of photo posters from people in our Facebook support group representing a variety of ages so the audience could see it affects people of all ages and from all walks of life. Unfortunately all the men in our group were camera shy so were under-represented!
The evening was hosted by Greg Page, the original Yellow Wiggle, founding member of the wiggles and recovered Dysautonomia patient. Our wonderful performers on the night were Anna Da Silva Chen on Violin, Eliza Sdraulig on Cello, Hoang Pham on Piano and Nicole Wallace with voice. Here is a photo of us backstage before the concert, minus Nicole who was grabbing a quick bite to eat before she went on in the second half.
Greg did a fantastic job of hosting and shared his personal story with the audience. He is passionate about spreading Dysautonomia awareness and was happy to help out – after all the fund at the baker that supports Dysautonomia research is named The Greg Page Fund!
We had a jam-packed program, filled with pieces by famous composers
After the speeches, Anna, Eliza and Hoang delighted us with chamber music for the first half of the concert assisted by dedicated page turner Vincent Ngo who has been turning pages for Hoang since he was about half his current size!
And Hoang performed one of his favourite pieces for us. He isn’t an internationally awarded musician for nothing! I love watching the way his fingers dance over the keys when he plays, it really is magical and you can see in his face how connected he is to what he is playing.
Then it was time for Nicole to thrill us with a perfect selection of beautiful pieces from popular Operas and Musical’s. And of course to make us all drool over her fabulous dress and give roses to the boys in the audience! David was accidentally given two and he was very happy – you can see him in the background of this picture.
I’m pretty lucky to have a friend like Hoang, someone who is so generous with their time, experience and talent. Someone who has such great connections who enjoy performing as much as he does and someone who is so photogenic! Yes ladies, he is single 😉
Then of course there was the obligatory after concert tomfoolery!
I hope you’ve enjoyed this snapshot of the concert! If you would like to see more images click here to check the full album by Candela Photography
Hope to see you at the next one!