On Monday night a very interesting episode of ABC’s ‘Q and A’ was on, it was a special edition for ‘Mental Health Week’ and the panel consisted of psychiatrists, mental health advocates, and industry professionals. One thing that was discussed at length was the stigma attached to mental health. It’s sad that there is still such a stigma because so many people have issues in this department. Why is there a need to feel so alone when millions of Australians are in the same boat? Mental health week is an initiative of the Mental Health Foundation of Australia and October 10th is World Mental Health Day. I have some friends who bravely share their mental health experiences and applaud them for doing so because only through sharing our stories can we reduce the stigma – so here I am, sharing my mental health story with you.
I don’t share my story that often. When I was younger I thought people would judge me for it, now it’s because when each ‘down’ phase passes I have a lot of other things to focus on health-wise that take my attention – until recently that is. I have had an off and on relationship with depression and anxiety for most of my life, though I only officially met anxiety a couple of years ago but it had always been there. Depression and I have flirted a lot and had a very serious relationship when I was a teenager when I was hospitalised with severe depression in a psychiatric facility and commenced on anti-depressants.
It was an interesting time, I was quite unwell and unable to function properly but the facility I was in, on the adolescent ward with other teenagers like me, was a different world. It was our safe place, our haven from the outside world. No other place felt as safe, not even my own bedroom when I went home again. We felt like nobody else in the world understood us like we understood each other, we could joke and laugh about it all because we understood, laughter is balm for the soul – even though outsiders thought we were morbid. We accepted each other for who we were, even though we were all different and had different diagnoses and issues. We became a family for a short period of time.
Returning to the ‘normal’ world was hard, I had lost a very close friend because he couldn’t deal with what I was going through. He just stopped talking to me, wouldn’t answer or return my calls and then ran away from me at school when I went back for one of the last days of the year. It was devastating. Teenage behaviour can be so hurtful and unnecessarily cruel. I guess it’s because they are able to separate themselves from their actions and the impact their actions have on others, thus negating any responsibility for the hurt they cause. Sadly some people don’t develop emotionally and socially past that point even when they reach adulthood so petty and spiteful behaviour that should have been left behind in the schoolyard continues.
The antidepressants I started on in hospital made me agitated and I began to self-harm. It was something I had never thought of doing before I started on them and research since has shown that that particular type of antidepressant significantly increases the risk of self-harm in adolescents so it is no longer recommended for them. I was lucky that my scars were not very deep, after they healed and faded you couldn’t see them if you weren’t looking – but I could always see them and felt they were obvious. I was ashamed of them, they reminded me of a part of my life I left behind and I felt people would look at me differently if they noticed them. I was able to cover them with a beautiful tattoo which makes them pretty well invisible and gives me something lovely and meaningful to look at.
For the last 5 years, my worst health years, I have got by pretty well on my own but now I can no longer do so. Everything has taken its toll and I am having trouble coping. I am finding it difficult to fully enjoy the fun things for long, I dwell uncontrollably on the bad things or what could be and anxiety and I have become much better acquainted. I am having trouble getting in touch with my creative side and have become more introspective than usual. I have very little motivation to write or make things which is made harder through medication changes and my overall state of health.
So I spoke to my GP. It was a difficult decision to make but I am glad I made it before I went further down into depression like I did the first time. I am still able to walk and talk, I can still hold a conversation, I am not experiencing hallucinations, I can still feel emotions – this is different to last time. I am in control. I made the choice to seek help and I made the choice to begin taking medication. I have noticed some improvement already but it is a work in progress.
It is completely understandable for people living with chronic illness to go through feelings of depression every now and then because, lets be honest here, it is complete shit and can be very overwhelming. It is very difficult to live with and there is an almost constant grieving process – grief for the loss of a life that was to be, grief for the loss of little things and big things, grief over the loss of friendships that couldn’t stand the changes, grief for a loss of function, grief for the loss of position in society; grief for the loss of pieces of the person you always thought you were and would be. There is so much grief sometimes it feels like you are drowning in it, it’s hard to imagine there would be no feelings of depression, but that doesn’t necessarily equate to a person being clinically depressed.
The fact remains though, that mental health goes hand in hand with physical health; it affects our overall wellbeing and can exacerbate symptoms – for example Dysautonomia is hugely affected by stress and anxiety because of the involvement of the autonomic nervous system and fight and flight response. It may not be the root cause of an illness but it can certainly contribute quite significantly and those of us living with chronic illness, particularly illnesses that fluctuate in severity or are progressive are at higher risk of developing depression and anxiety. Beyond Blue have a handy online checklist you can fill out if you have any concerns about your mental wellbeing, it takes 1 minute to complete.
There is a stigma surrounding some invisible disabilities in the medical community, almost as much as mental illness. This is because the underlying issue is not visible or easily understood which makes them a little scary for some health care practitioners who would prefer to believe they do not actually exist rather than step into a world they do not know and admit they are unprepared. It is easier to give something an incorrect label than simply admit ‘I don’t know’.
In the invisible illness community we hear of many people coming up against this attitude in the medical system who are then mis-diagnosed with mental illness. They have had themselves and their underlying conditions dismissed as anxiety or depression when this was not the case. Those misdiagnoses sometimes lead to inappropriate treatment and ongoing issues with symptoms being taken seriously or looked at from a different perspective. They failed the people who were diagnosed with them and meant their fight for appropriate treatment and diagnosis was made that much more difficult. We don’t need that, we need better education and awareness of complex, chronic conditions and conditions that are not as commonly diagnosed.
On the other side of the coin is the fact that once these diagnoses have been made the person is often left to fend for themselves, if a mental illness diagnosis is made then surely that should be followed up with effective and appropriate treatment. Why are people with mental health diagnoses being dismissed and sent out on their own with no support and no follow-up? According to the Mental Health Foundation of Australia: 1 in 5 Australians will experience mental illness in their lifetime. That’s the same statistic as people living with disability – there are millions of us. But the healthcare system in Australia fails many people living with mental illness and complex, chronic or rare conditions because it is not properly equipped to help them, it needs some change. Mental health week and Mental Health day are steps towards those changes, towards increasing awareness and removing the stigma – sharing our stories is an important part of that.
If any of this story has raised personal concerns or you think you need help please check out the following resources
LifeLine 13 11 14
Beyond Blue – 1300 22 4636. Beyond Blue Website
Grief Line 03 9935-7400
Kids Help Line – 1800 55 1800
Medicines Line – 1300 888 763
Mensline – 1300 78 99 78
OCD & Anxiety HelpLine: 03 9886 9377 or 1300 269 438 (Victoria)
ParentLine – 1300 30 1300
SANE Helpline – 1800 18 7263
Suicideline – 1300 651 251
Victorian Government Mental Health Advice Line – 1300 60 60 24 (Nurse-On-Call) http://www.health.vic.gov.au/mentalhealthadvice/